Day 258

Tonight we are in the infusion clinic as planned. Sarah is starting to need less and less fluids, but she doesn't want to get off track and become severely dehydrated. Sarah is still having quite a lot of pain in her body. She is starting to regain feeling in certain parts of her chest, but the feeling is coming back as pain and discomfort. She is working with a pain specialist at SCCA, but he hasn't found a great solution so far. She is still taking a long acting pain med, but is trying to find a quick acting medication that will give her some immediate relief when her pain is at its worst.

Last night Sarah and I had little Roman (or not so little anymore) for a fun sleepover with Auntie and Uncle. Sarah is having more and more fun with Roman as she gets more and more strength. Little Ro wasn't feeling very well but his Auntie Sarah took good care of him. She was trying to help him learn to blow his nose, she took his temperature often, she made sure he was drinking enough fluids, and she rubbed his little back after each cough. She is the best auntie a little boy could ask for.

For the past week Sarah has been caught in an uphill battle with her sleep again. She is back to the place where exhaustion is setting in but sleep never comes. Over the last two nights Sarah has probably only gotten 2 hours of sleep total. Sarah definitely needs to get some sleep soon and sleep for her is our main prayer request.

-Kirk