I wanted to start a little different today. Below are some questions I frequently get asked and I wanted to share my answers to all my readers. I hope you enjoy seeing a peek into my soul…it is damaged and bruised but it will push on.
How is your pain doing?
My pain is overwhelming. I have been in touch with the Seattle Cancer Care Alliance Pain Clinic at least once a week trying new medications and dose changes. I feel weaker than ever and I seem to only get worse as the weeks go by. Today I started a new medication cocktail but I must wait 24-48 hours for it to fully kick in. I’m praying that this will be the last “new” medication we will have to try and I will finally receive some relief. My pain level is normally at an 8, which is very high, but with this new cocktail it should go down to a more manageable number such as a 5.
What is the hardest thing you are going through this week?
There are a few things I am having trouble with this last week. I am having trouble with feeling like I don’t have the strength to do anything on my own. I get panicked that in the middle of most activities I have to take a break and rest… for goodness sakes…..I’m 25 years old I shouldn’t have to take a rest after folding laundry! I am also feeling like such a horrible wife. I am unable to clean our house, do laundry, go grocery shopping, cook a meal, well basically everything that a wife is supposed to do. I feel like Kirk should run away from me because I am the neediest woman on the face of the planet. I push myself as hard as I can to do the dishes before Kirk comes home to the point of tears because my legs are too weak to stand but I couldn’t look at myself in the mirror if I didn’t get them done. I’m losing my mind being this weak. God help me be strong! Not just on the inside but on the outside too! Another issue that is becoming a major problem is my dignity. Because of all the things I have had to go through, medical appointments, weight issues, bleeding issues, hospital visits, and personal questions from every medical form possible I feel like I have lost all but an ounce of my dignity. I have no secrets from the world. I have no secrets from my husband…trust me it is good to have some secrets from your spouse. Such as how many times you can throw up in the car in a single trip or what your head looks like when patches of hair are missing. This week has not been the worst week ever but it is one of the few I won’t be forgetting.
What is the one thing you want to do but you are unable to right now?
I want to fly. Not crazy fly like a bird but I want to get on an airplane and fly to Maui. I need a Maui trip more than anything right now. You have no idea how that island soothes the soul. God took special time creating my island and I am desperate to get back there and enjoy it.
What scares you in your treatment process at this time?
Most of my treatment processes are over right now but there is one that hasn’t started yet and it is scaring me already. My hormone therapy. Hormone therapy should keep my estrogen levels down enough to keep the cancer from returning. I haven’t started the medication yet so technically there is nothing keeping the cancer from returning. That is a little unnerving right now.
Who is your angel in disguise these days?
You may have guessed it but I have many! First of all I have my husband. This man doesn’t complain after he comes home and I haven’t had the strength to get out of bed and pick up the house. He doesn’t get upset that I don’t have the energy to go anywhere and we are stuck sitting on the couch all weekend. Kirk is just satisfied being with me, caring for me, loving me and holding me while I cry. If Kirk isn’t an angel sent to me from God I don’t know what he is.
More angels…my family! Each and every member of my family. Especially my mom. My mom pushes me to live. She pushes me to get stronger. She pushes me to stand tall and fight for what is mine. A big reason why I fight hard is because I have a strong woman holding me up and her name is Barb Hawkins, my mother. She has walked the road before me and now she walks the road beside me. I love you mom. I couldn’t do this without your guidance and confidence.
Is it hard keeping up your smile?
Yes. It is hard to keep smiling when my heart is breaking and tears are only seconds away. It is hard to keep smiling when all I want to do is hide my face and scream in frustration. The hardest part of keeping a smile on my face is the fact that all I want to do is smile for real. I want joy to conquer all. I want victory over cancer and smile because I have won. I smile because I know one day I will have victory and that my life will be wonderful again. Kirk and I will succeed and we will have our happily ever after…at last.
Thanks for holding me close to your hearts as you watch me walk this journey. Pray Pray Pray and then Pray some more. The Lord listens to his children and I know He hears our every word.